The Benedryl given to Ryan prior to his ATG treatment knocked
him out within 10 minutes, which has left me sitting in this quiet room with my
laptop, searching for as much information as I can find on Aplastic
Anemia. I have found some, but overall,
there just isn't a vast amount of information out there, and what I can find is
mostly redundant.
I was hoping to find tons of stories about people that have
beat this, but I have only been able to find a few blogs written by AA patients
or their parents. What I have read from
them has given me a good idea of the roller coaster ride we are likely to
experience in the days and years to come.
Tonight, I feel like we are so alone. All of the kids we have met so far at the
hemotology/oncology clinic have Leukemia.
The posters on the wall are all for leukemia organizations, sickle cell
summer camp, leukemia/lymphoma society, Gilda’s Club, etc. Not a single aplastic anemia related item in
the office.
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