We seem to have settled into a pattern over the last
month. Ryan receives platelets each week
and then by the following week’s appointment his platelet count is back down
around 10,000. He is also continuing to
require red blood about every 2-3 weeks and his bruising is increasing to a
similar level as to when he was first diagnosed.
My gut is telling me that we are headed toward a bone marrow
transplant. However, I am not the
expert. Speaking of which, we are still
waiting to speak with the expert. We
started the referral process about 6 weeks ago and somehow, everything has not
yet aligned to where we are even allowed to make an appointment. I have confirmed that the referral has been
received, but for some unknown reason, we are still not able to schedule. I am beyond frustrated with this process.
So frustrating! I'm sorry Patrice. Do you think the hold up is with Mary Bridge or Seattle Children's? Email me if there's anything I can do to help!
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